Grateful on Thanksgiving Day
I’m grateful for living in the USA, the land of the free and home of the brave. I’m grateful for the health and happiness of my family. I’m grateful for my wonderful friends and dedicated work colleagues.
Given my family’s larger-than-life battle with Lyme Disease the past 15 months, I am ever so grateful for the progress being made on Lyme Disease awareness and new research. From the California Lyme Disease Association:
2008 has seen much progress towards helping the cause of patients suffering from Lyme disease and other tick-borne infections. Here are some things we’re grateful for this Thanksgiving season.
Lyme Documentary “Under Our Skin”
This award-winning film powerfully depicts the plight of Lyme patients and explores the political controversy surrounding this disease. The release of the film has been a catalyst for wide-ranging news coverage of Lyme disease on TV, radio, newspapers and the internet. Find a screening near you.Cure Unknown: Inside the Lyme Epidemic
Science journalist Pamela Weintraub thoroughly documents the history and controversy surrounding Lyme disease. Like the previously mentioned film, this book has helped raise the national level of Lyme disease awareness.AG Finds IDSA Culpable for Lyme Guidelines
In a landmark anti-trust investigation of the Infectious Diseases Society of America’s Lyme treatment guidelines, Connecticut Attorney General Richard Blumenthal found the IDSA suppressed evidence, excluded opposing viewpoints, and ignored significant financial conflicts-of-interest by several members of the guidelines panel.In a settlement, the IDSA agreed to re-examine its guidelines with a new, conflicts-free panel and to hold a public hearing to air divergent opinions. The process of choosing the new panel is going on now.
CALDA, Time for Lyme, the Lyme Disease Association and other Lyme groups worked behind the scenes to help bring this situation to the attention of the Attorney General. It is a stellar example of how patients’ groups can join together to accomplish large goals.
More steps forward:
1. More doctors are learning to diagnose and treat patients according to the guidelines set forth by the International Lyme and Associated Diseases Society (ILADS).2. More patients are learning to help themselves and each other by joining CALDA’s network of on-line state Lyme support groups. To join a group, click here.
3. More Lyme research is being funded by CALDA and other patients groups.
4. Recently, CALDA successfully held the first Lyme activists’ training workshop in connection with the national LDA/ILADS conferences. This means more people than ever are becoming involved. Click here for the “Activism” section of CALDA’s web site.
